Our best Christmas present was yet to come...at last Jessie is making some progress with her medication and managed to eat (and largely enjoy) a reasonable-sized meal at lunchtime on Christmas Day.
Some time this week she will have an iron infusion (when it arrives at the local hospital) which will hopefully help her energy levels and general wellbeing - to date iron injections have had little effect.
Crohn's is an insidious disease which affects your whole life and there is no cure. Whilst we concur that there are much worse things in life, Crohn's is not at all pleasant. Something I wouldn't wish upon anyone.
We eagerly await Jessie's admittance into the Infliximab trial - sooner rather than later, we hope. By all accounts the drug makes a huge difference to the lives of Crohn's sufferers, but we (and many others) still need it to be included on the PBS so that it is affordable and accessible to those who need it.
If you haven't yet voiced your opinion on the petition to the Australian Government, please do so on http://www.infliximab.org/
There are links and explanations about Crohn's Disease (as well as Ulcerative Colitis). If you read what other sufferers and their families have to say you will quickly come to the conclusion that noone should have to suffer this debilitating disease or the ugly side effects of drugs currently used to treat the disease.
Thanks - we need all the help we can get.
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